Many Faces of Moebius Syndrome celebrates 15 years of global awareness ahead of MSAD 2026, inspiring communities worldwide to share their voices. As we prepare for the 16th Moebius Syndrome Awareness ...

The Rare Neurological Disorder Foundation will launch its inaugural Founding Cohort Fellowship this month, a selective fellowship designed to restructure the organization into a national powerhouse ...

DIX HILLS, Long Island (WABC) -- A school community in Long Island raised nearly $1,000 to celebrate a kindergartner who suffers from a rare disorder. Faculty, students and families of the Half Hallow ...

This is an archived article and the information in the article may be outdated. Please look at the time stamp on the story to see when it was last updated. THE BRONX, N.Y. (PIX11) — Luis Velazquez is ...

Sharing personal stories of individuals with Moebius Syndrome and their families can help us to better understand the challenges they face and how advocacy, education, and support can make a ...

Addison “Addie” Garvey is a Melville 10-year-old who enjoys dance and cheerleading, loves to read and write and plays drums in a band. She thrives in her fourth-grade class at Sunquam Elementary ...

Moebius Syndrome Awareness Day is January 24. I'm a psychology professor who has and studies Moebius syndrome. Here are seven reasons why people with Moebius syndrome like myself seek understanding on ...

A Bucks County family is trying to raise awareness about a rare syndrome that has paralyzed their son's face. Chalfont, Bucks County, is lit up with purple lights for a brave little boy and the ...

I want to thank Rhonda Simmons and the Culpeper Star exponent for posting a story about me and The Many Faces of Moebius Syndrome website manyfacesofmoebiussyndrome.com last January. The story was ...